sarahloudobby

Hello everyone. I have just requested to be tested for Sjögren’s syndrome alongside my symptoms of POTS and possible lupus. I have always struggled with auto immune disease since 2002 when I came down with a virus and never fully recovered. I have had good and bad patches but since having covid twice in the space of fifteen months my symptoms have become awful. Does anyone else have any experience like this? I now have intermittent Dypsnea, worse heart palpitations and dizzy spells where the black comes in from the outside of my eyes and I almost pass out entirely. I have very dry eyes and nose and need so much sleep. I am managing to work as I work part time due to having two children who I co-parent with me ex. I love my life I just wish I could feel a bit better and not so tired.

Hi everyone. I’m actually waiting for official POTS diagnosis I’ve always had symptoms but it’s been much worse since my second bout of covid. I am wearing a heart monitor for 24 hours next month just waiting for the appointment date now. I am managing to continue working at the moment but I have extremely dizzy spells sometimes when I stand, low blood pressure, a pounding heart and shortness of breath. The amount of floaters in my eyes has sky rocketed lately (always had them as I’m extremely short sighted) and I have bad ‘coat hanger’ pain in my head neck and shoulders which I have sports massages for to relieve the tension. Anyway the point of my post is this odd feeling I experience where I have such bad brain fog I feel like I’m not even really in my own body that I’m just walking around doing everything but watching through someone else eyes. Does anyone else have any idea what I mean?