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Maili

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  1. Saw my doctor today. She ordered tests for a GI and instead of 3 months it's 3 weeks. Endoscopy and colostomy. When I went in to see her, I had something new that happened. Last night I had a coughing fit and saw I had coughed up blood. Telling her this on top of everything she already knows - she proceeded to tell me it was my anxiety causing all of this. That hurt. I've switched my primary 8 times in the span of 2 years cause they wouldn't take me serious. My cardiology team was switched 2 times - my present cardiology team is amazing as they have prior evidence from my old care team and new evidence from recent tests supporting POTS. I'm at a loss again as I'm dealing with a doctor who never looked at my file, and doesn't know what POTS is.
  2. Hello! I have been struggling with eating for a while now. Normally I can push food down with the struggles I face (difficulty swallowing, constant nausea and stomach pains) but now something new has come up and I thought it would go away. It's been 4 days now. You know when you eat something and your gag reflex is triggered? You start dry heaving? Anything I eat, my gag reflex is triggered and it forces me to spit it back out. It's been 4 days, I haven't eaten anything because when I try - I'm heaving and spitting it back out. I have Orthostatic Hypotension but my doctors feel it was a misdiagnosis from my old care team (who were horrible) and that it's POTS. I am on midodrine and flutocortizone. My symptoms are worsening over time. My tremors are more frequent, I have really bad vertigo, I need a walker to be mobile..and now eating has become a challenge as well. I am a 26 year old female. Has this happened to anyone before? What can I do to ease this discomfort? I ordered some ensures, protein shakes and v8s to still get nutrients but I don't know how long that will help until my GI appointment in 3 months.
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