Greetings,
31 Male. Looking to see if any of my symptoms match or seem very similar to anybody here who has been officially diagnosed with a dysautonomia-related issue. My doctors have suspected POTS but I was immediately dismissed by a cardiologist a couple years ago during testing. Long story short, I've had long-covid for 2 years now; diagnosed with assumed ME/CFS based off of 2 years of clean blood tests and heart tests. My doctors do not want to do any more testing at this point. I'm not turning here for a medical diagnosis, just wanted to see if my suspicions about dysautonomia are possibly true so I can continue to press my doctors. I have not had any sort of official autonomic testing.
Symptoms:
-Fatigue
-Sensitivity to light
-Dozens of new eye floaters, blurred vision
-Constant bounding pulse that is visible in my neck and stomach (was not visible prior to infection). Can feel my pulse throughout my body when I lie down; again did not exist prior to infection
-Periods of pulsatile tinnitus when very fatigued
-Exertion intolerance (heart rate spikes immediately after very light exertion)
-Increased sweating
-Unrefreshing sleep
-Neurological symptoms: constant spaced out feeling, some lightheadedness
The cardiologist who dismissed me did a poor man's tilt test in his office. My resting heart rate was at 50bpm; when I stood up it immediately spiked to 100BPM in the matter of 10 seconds. The issue that got me dismissed, however, was that it returned to 55-60BPM within the 1-2 minute range; it was not a sustained increase. I have had instances at home, however, where I've gotten up off the couch after a nap to use the restroom, and my heart was racing and pounding in my chest for several minutes and it was extremely uncomfortable. I also experience palpitations whenever I climb a flight of stairs or am physically active at my job. Just last week my elderly father asked me to help him lift a package into the back of his truck and that alone caused my heart to race and pound in my chest for a few minutes. I used to regularly split wood and work on my parents' farm prior to getting sick so I was very active and physically fit.
I know something is wrong with me, I just want to see if I'm similar to anybody here so I can get some closure. The lack of a definitive answer is driving me crazy. Thank you very much in advance!
