JennM

Dysautonomia/pots is so very confusing. I suffer from Hyperadrenergic pots. Typically giving me high blood pressure and tons of adrenaline/anxiety. Over 20 years I still haven’t seen it all. I go up in down on blood pressure. Sometimes it’s bottomed out for very long periods and I can’t Get out of bed safely, other my blood pressure will be normal to high. Some times I feel fine, sometimes I will pass out still. At the ED is was 178/98. For me personally when I stand too long, or really at all, my blood pressure or heart rate will just bottom out and I faint. When I wake up, my blood pressure is ALWAYS normal. I recently watched a lecture by dr Grubb and he touched on it. That after you pass out, your body desperately tries to get back to what’s normal and can overcompensate…he called it the “Jimogie” effect on something like that. I went into 2 years of submission, even though they said I’d never get better. Hang in there. . I feel your frustration and I’m sure his as well. Seems our body chemistry changes so much that what once worked, now doesn’t. If you have any other questions..or you found the answer 🙏🏻 Let me know. Both my kiddos have pots too and one is Hyperadrenergic, the other hasn’t been tested yet. if you are Instagram, you can find ne at Jenn_Mumma. I really pray he is doing better.