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Lburnham

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Everything posted by Lburnham

  1. Also, POTS patients presenting with unusually frequent and severe episodes of syncope may benet from further evaluation by ILR, as some of these patients, having NCS as well, may be candidates for cardiac pacing." - That's ME! But I don't understand if I have POTS and NCS or just NCS.
  2. Hello, I'm not sure how helpful this is, but I do have a pacemaker and it was implanted because I went into cardiac arrest (asystole for 40 seconds). The pacemaker has completely resolved that issue, as it will not allow my heart to stop. I'm still left managing presyncope symptoms, taking salt, fludrocortisone, lots of fluids, etc. But overall feeling pretty good. I'm still confused what happened, whether I have POTS or not, etc. Things do seem to suggest pacemakers are not that helpful for POTS, but mine is specifically designed to detect physiological changes and work to prevent a faint. I wonder if this technology would help people with POTS or maybe not. In any case, it's a Biotronik Edora DR-T - dual chamber. When I got it, my Dr. said it was the only one on the market (or the only one he implants?) that can do this. I'm sure things have advanced in the last few years as well. I guess I'm here to say, don't fear the pacemaker if it's recommended, it has helped me and I have not fainted since, even if I still get some presyncope symptoms and manage other symptoms, at least I won't faint and have my heart stop again.
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