My dysautonomia left me with low pulse, low blood pressure, and the sleepiness and fatigue that were insurmountable at times. I would have to sleep for a while to continue on with my day. I’ve been dealing with it for 30 years, so imagine my surprise when I was put on Gabapentin at urgent care, after a fall that caused herniated discs in my neck; and it raised my pulse by 20 to 30 beats per minute! I was fighting nerve and muscle pain, but I was AWAKE. I can stay awake after meals and work for hours on end around my home ,and then still walk the dog. I am dumbfounded. The amount of cardiology and neurology appointments I’ve had since I was 14 years old somehow never got me to Gabapentin. My sister and brother have disabilities from different forms of dysautonomia, RSD and MS which are far worse than my version. They WERE both prescribed Gabapentin but it made them too sleepy to continue with it. My reaction seems very weird as I’m much more awake and normalized. Fascinating
I wAs able to get surgery in 5 weeks but the results remain so far. I’ve now been off Gabapentin for 7 days and the pulse is still at record high numbers. My pressure was still quite low during all the surgical pre op tests but the pulse has stayed up, as has my energy and ability to stay awake. I can’t understand why it hasn’t dropped back down, but perhaps my autonomic system reset somehow. 🤷🏻♀️
I would definitely give it a try if you have POTS, worst case you get really sleepy or it doesn’t help. My change has been nothing short of miraculous. Good luck!
