Tate
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Posts posted by Tate
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Hi!
my name is Tate and I live in Birmingham, AL. I am new here too. I am assuming you are coming to Baptist Montclair to visit with the MVP clinic. While you are here you may want to get an appt. with a cardiologist at UAB's Kirkland Clinic. After 19 years of searching for a diagnosis (I have been dealing with POTS/Neurally Mediated Syncope since age 8) I finally found it through the staff at the Kirkland Clinic and the testing of Dr. Cauglin (he is listed on this site under physicians) from what I understand he pretty much helped to create the Tilt Test...perhaps you could get your results to him for review. Just a thought. I am living proof that a second opinion or in my case 19 years worth!!! Plus, you need warm weather? It is 78 degrees here today!!! I hope you are able to find an answer...I have discovered that finding a reason, a diagnosis after all this time really did help!!
Best Wishes!
Tate
Diagnosed: 2/05
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Hello!
My name is Tate, I was recently diagnosed with POTS/Neurally Mediated Syncope. I have been suffering from this since I was 8 years old and have been looking for a diagnosis since then, it only took 19 years!
I am lucky that I live in Bham, AL and have access to the Kirkland Clinic and Dr. Coughlin. I am trying Pinidol (a week in) as my beta blocker and Fludrocortisone. I have read many differing side-effects that might come with these medications. I was wondering if anyone had experienced sleeplessness with either medication or weight gain? The sleeplessness I am experiencing immediately, the weight gain has not occured yet but seems to be a reoccuring theme in the texts I am reading. Also can an anyone reccomend a good diet plan/nutrition guide for people with this condition? Since I am on Fludrocortisone should I avoid salt in my food? I happy to finally have a diagnosis but scared as well. I am longing to get to a point where I have the ability to exercise without having an episode ..I just need help getting there! I am so relieved to find this forum!!! Thanks for any advice anyone can share! Also, thought it best if I share a tidbit I have found to work. Even before my diagnosis I knew dehydration was an issue, last year I found SMARTWATER by Glaceau is Great! It is electrolyte enhanced water but without the sugar in Gatorade. You can buy it online or at Target...drinking it has been helpful!
What caused your pots?
in Dysautonomia Discussion
Posted
I started fainting at age 9, but my Mother and I believe I demonstrated symptoms prior to that. At age 2 she took me to Children's Hospital for brain scans because I was nodding and falling over, they found nothing in the scans. I believe that was an early sign. I was just diagnosed (after 19 years of searching). My major symptom is fainting but I have palpatations, sweats, fatique etc...
I take Pinidol (BB) and Florinef.