Tate

I started fainting at age 9, but my Mother and I believe I demonstrated symptoms prior to that. At age 2 she took me to Children's Hospital for brain scans because I was nodding and falling over, they found nothing in the scans. I believe that was an early sign. I was just diagnosed (after 19 years of searching). My major symptom is fainting but I have palpatations, sweats, fatique etc... I take Pinidol (BB) and Florinef.

Hi! my name is Tate and I live in Birmingham, AL. I am new here too. I am assuming you are coming to Baptist Montclair to visit with the MVP clinic. While you are here you may want to get an appt. with a cardiologist at UAB's Kirkland Clinic. After 19 years of searching for a diagnosis (I have been dealing with POTS/Neurally Mediated Syncope since age 8) I finally found it through the staff at the Kirkland Clinic and the testing of Dr. Cauglin (he is listed on this site under physicians) from what I understand he pretty much helped to create the Tilt Test...perhaps you could get your results to him for review. Just a thought. I am living proof that a second opinion or in my case 19 years worth!!! Plus, you need warm weather? It is 78 degrees here today!!! I hope you are able to find an answer...I have discovered that finding a reason, a diagnosis after all this time really did help!! Best Wishes! Tate Diagnosed: 2/05

Hello! My name is Tate, I was recently diagnosed with POTS/Neurally Mediated Syncope. I have been suffering from this since I was 8 years old and have been looking for a diagnosis since then, it only took 19 years! I am lucky that I live in Bham, AL and have access to the Kirkland Clinic and Dr. Coughlin. I am trying Pinidol (a week in) as my beta blocker and Fludrocortisone. I have read many differing side-effects that might come with these medications. I was wondering if anyone had experienced sleeplessness with either medication or weight gain? The sleeplessness I am experiencing immediately, the weight gain has not occured yet but seems to be a reoccuring theme in the texts I am reading. Also can an anyone reccomend a good diet plan/nutrition guide for people with this condition? Since I am on Fludrocortisone should I avoid salt in my food? I happy to finally have a diagnosis but scared as well. I am longing to get to a point where I have the ability to exercise without having an episode ..I just need help getting there! I am so relieved to find this forum!!! Thanks for any advice anyone can share! Also, thought it best if I share a tidbit I have found to work. Even before my diagnosis I knew dehydration was an issue, last year I found SMARTWATER by Glaceau is Great! It is electrolyte enhanced water but without the sugar in Gatorade. You can buy it online or at Target...drinking it has been helpful!