JennKMac
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Posts posted by JennKMac
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@MikeO, right now, only Ivabradine. 2.5mg, twice a day.
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Thanks, @cmep37. I actually don't have an increase in BP on standing, just the HR increase. I do understand that is a criteria for formal diagnosis of hyper POTS, but I also don't have any of the other typical symptoms seen in Hypovolemic POTS either. I'm hoping to see medical providers at a dysautonomia clinic sometime this year to get a clearer understanding of what exactly is going on with my POTS. My cardiologist is as helpful as he can be, I think. But without that specialty focus on dysautonomia, I know there is something missing in the testing capabilities, etc. If I hear any more on other platforms about wearable autonomic nerve stimulators, I'll be sure to pass the information on to you!
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I have POTS (triggered by a long-covid infection from April 2020). Although this has yet to be confirmed, I am fairly certain I have the hyperadrenergic version. I just started taking Ivabradine (after taking metoprolol, which gave me terrible headaches and brain fog) and have found that it does reduce my HR to some extent. However, I am curious if other POTSies have used wearable devices like Apollo Neuro, COVE, AMO+, etc. And if so, if the device brought any relief from the high HR. Thanks in advance! (I did see an older post on this same issue, so I am hoping there are more experiences to be shared since then. Or perhaps the same individual can share how the device has helped long term.)
Wearable Devices for POTS
in Dysautonomia Discussion
Posted
@cmep37, my POTS is definitely secondary to Covid. I don't fit the bill for hEDS.