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JennKMac

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  1. @cmep37, my POTS is definitely secondary to Covid. I don't fit the bill for hEDS.
  2. @MikeO, right now, only Ivabradine. 2.5mg, twice a day.
  3. Thanks, @cmep37. I actually don't have an increase in BP on standing, just the HR increase. I do understand that is a criteria for formal diagnosis of hyper POTS, but I also don't have any of the other typical symptoms seen in Hypovolemic POTS either. I'm hoping to see medical providers at a dysautonomia clinic sometime this year to get a clearer understanding of what exactly is going on with my POTS. My cardiologist is as helpful as he can be, I think. But without that specialty focus on dysautonomia, I know there is something missing in the testing capabilities, etc. If I hear any more on other platforms about wearable autonomic nerve stimulators, I'll be sure to pass the information on to you!
  4. I have POTS (triggered by a long-covid infection from April 2020). Although this has yet to be confirmed, I am fairly certain I have the hyperadrenergic version. I just started taking Ivabradine (after taking metoprolol, which gave me terrible headaches and brain fog) and have found that it does reduce my HR to some extent. However, I am curious if other POTSies have used wearable devices like Apollo Neuro, COVE, AMO+, etc. And if so, if the device brought any relief from the high HR. Thanks in advance! (I did see an older post on this same issue, so I am hoping there are more experiences to be shared since then. Or perhaps the same individual can share how the device has helped long term.)
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