Hi, this is my first time posting in this forum so I hope I'm doing it correctly!
I developed POTS at the beginning of 2020 after a bout of an unknown viral illness. From then on my symptoms worsened until finally in April I had to quit my actice factory job and drop out of college. I'm currently 22. I was diagnosed with POTS & SVT (AVNRT) in July. I underwent a tilt table test and ablation in September. I was then put on Metoprolol.
I had a fairly rough recovery and was fairly close to bedridden until January. I had awful tremors, dizziness, brainfog, fatigue, and of course tachycardia. My heart rate would shoot up between 140-170bpm upon exertion. In February I did a trial of Ivabradine but it only made me dizzy/disoriented and fatigued. I felt weighted down.
Since then I haven't made much progress. I'm on the metoprolol, I drink the recommended amount of salt/water/electrolytes (although the salt seems to gives me migraines sometimes). I no longer have brainfog, nor am I dizzy. I get a full 8 hours of sleep each night, 3 meals a day, my diet is high in protein low on carbs. But, I still cannot do anything because of my high heart rate and fatigue upon exertion. I've started walking on the treadmill for a few minutes at a time, slowly. My heart rate gets up to 150-170.
I went through autonomic testing, my QSART and Valsalva came back normal. My TTT obviously did not, my heart rate hovered around 170bpm. My blood pressure was/is normal and stable. I've never passed out. I don't have comorbities, unless you count SVT as one. I can walk around the house okay, when I'm laying down or sleeping I don't have issues. Is anyone out there like me, or have ideas? I find my case kinda strange. My next appointment with my doctor isn't for three months.
I'm getting tested for sleep apnea in three weeks too, not sure if that could have an impact on my symptoms if I do indeed have it.
