Hello all!
My name is Joy and I am very new to this network (this is my first post). I'm 21 years old and was diagnosed with POTS around 11 years ago. Growing up with POTS, it was very easily managed with different doses of propranolol. However, that stopped working about two years ago and due to other health complications I cannot take any other medications to control my POTS. In general, I have been able to keep up with my normal activity, including going to university, although I do things at my own pace and have lots of accommodations at school. I do experience episodes every now and then, especially when I get busy. However recently, I've noticed I'm having more episodes (near or full syncope, weakness, sweats, etc.) around my period. I've only started having my period regularly within the past year because of a change in birth control. I wanted to reach out and ask if other people experience this too? If you do, is there anything you find that helps less the intensity of the episodes?
