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About EH89

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  1. Hi everyone, Could someone please recommend a specialist in Sydney in Dysautonomia. I’m not really looking for a cardiologist, more a neurologist. My symptoms are more neurological. Thank you very much in advance.
  2. @Pistolthank you so much for taking the time to respond. It really is very encouraging to hear that you live a very fulfilled life despite the challenges. If you don’t mind me asking, what does your life look like now? What are your limitations so to speak? I am in the process of getting an appointment with a rheumatologist to investigate AI issues. One final question, I have been having a lot of trouble sleeping lately. It seems to be a mixture of anxiety and the adrenaline. My GP has given me a benzodiazepine to assist but has stressed it is only a short term solution. Any su
  3. Hi everyone, I am looking for some advice/guidance/relatability! In hindsight, I have had symptoms of dysautonomia since my teenage years (my vision would black out when I got out of bed in the morning, occasional blood pooling in my feet, and GI issues if I ate a big meal). I’ve always thought these were normal. Then about 2.5 years I woke up one morning with a really swollen salivary gland. I was travelling at the time and didn’t think anything of it and it went away, but then I started developing fatigue, especially in my arm and leg muscles. I underwent some blood tests but
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