There is a bit of history behind my question.
I’ve had POTS since it was brought on by a surgery in 2016 when I was rendered completely bed/wheelchair bound. In the spring of 2020 my symptoms suddenly and unexpectedly got much better , I kept up with my medication and IV regimen but was probably 75% better. Within the last six weeks I have gotten extremely tired needing naps every few hours and now the tachycardia is back when I’m upright though this time my blood pressure is fine, last time even on all of the treatments we struggled to keep my blood pressure up. I’m hoping that this is a flare but I’ve read that POTS can spontaneously go away and come back and I fear this may be what is going on so my question is this.
How to live life everyday, I don’t want to return to lying on the couch or in bed all day everyday. How do you all spend your days? I should also note that so far this time around I’m not having too much dizziness yet , no fainting, it’s simply tachycardia with the posture changes that leaves me severely fatigued, I’ve been sleeping for most of the past three days. I’m struggling with do I just try to push on as normal and then sleep when I crash?
I’m the type that needs some sort of plan to do something about this to help myself the problem is that I don’t know what to do just like last time.
Looking forward to your advice