Hi all!!
A bit of background - I first discovered this forum a while back when I was first looking into IV fluids for my POTS. I've since had a series of crazy good luck with super understanding and knowledgeable doctors (but bad luck with my health speeding downhill) and long story short, I now have a port and receive infusions five days a week. My question is in regards to the port - how many of you have one/any other visible medical device and how do you deal with it? I had to attend a family funeral over the weekend while accessed (we tried to avoid it but I've been in a crazy flare), and unfortunately part of my port was visible with the dress I was wearing. I had several comments made by family members essentially telling me to cover it up. My mother even told me it would scare the children, and my grandfather told me I should invest in clothing that keeps it covered. I want to talk to my mom about some of her comments but I don't even know if I have any right to be upset, like am I actually the one in the wrong here? I'm just pretty frustrated and could use some advice!
Thanks y'all!!