frustratedmother

PLEASE- does anyone have a doctor that will recognize this blood sugar issue?! I have a 14 year old daughter with Ehlers Danlos and severe hypoglycemia since birth (kept 10 days in the hospital post birth because she kept crashing!) She wants to go to high school like other kids (been home schooled because of it). I can't find a doctor in east TN that recognizes this. In order to go to school she will need a continuous glucose monitor prescription and a permission script to eat in the classroom. All I get is lectures about a low carbohydrate meal and regular eating. She can crash 20 minutes after the "perfect" meal one day and on another day that meal keep her stable for 4 hours. If she snacks all day long it INCREASES her risk of cycling. If I get another lecture designed for diabetics I swear I may hit the next doctor!! My daughter just wants to go to school like other kids. I need to find a doctor who is familiar with this condition. We will travel where ever we have to go in order to finally get a doctor who gets it.