Princess Peach

When I read tia here 

This has really scared me

Sorry to hear you had tia

Is that like a stroke ? 

That's what they thought I had bit it was excess csf fluid 

At the moment

I have swelling at bottom of body 

Bad headaches after laying flat and internal tremors after laying flat 

Hi 

I had visual disturbances after a while of inactivity & weight gain one summer which I thought was ocular migraine as I had had it in pregnacys before but it would go by the end of the day but this one didn't go so they found optic nerve swelling at the the back of my eyes mostly left eye and did a load of tests including a lumbar puncture which straight away Got rid of the visual disturbances and the water retention and some of the excess water weight 

I was then diagnosed with iih 

They trialed me on acetazolomide 

But that made my whole body tighten up and spasm and mainly kidneys 

So I stopped that

Lost some weight

Tried spironalactone 

As I also had a large cyst on ovary causing excess testosterone 

But that caused me to feel like my head was too heavy for my body and like I couldn't stand

In the end I just lost the weight which seemed to help 

But then when the cold weather started up around Christmas u started to get shakes in my legs and arms around night them really bad headaches and chest pain

I went into hospital again 

I felt too sick to eat or drink much

So after this lumbar puncture 

It was actually low

Not high like the first one I had with the eye symtpms 

I thought I might have a spinal leak from the lumber puncture testing 

But in the end I was diagoosed with dysautonomia or pots

But mystery optic nerves was not swollen anymore

but my pulse would for fast qhick at times of standing up 

This has gone down a bit now

But now I get tremor upon waking almost every night

not sleep to Wake mode it happens 

I wake tired still with a sore throat headache and neck ache 

I only get chest pain on exertion now 

I'm awaiting a 5 day heart test 

At the moment I have been inactive due to lockdown

And waking up with heavy head

Dizzy 

Eyes flitting

And head heavy