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Nin

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Posts posted by Nin

  1. I had a eeg done and these siezures are non epileptic. When I said to the epilepsy nurse maybe it's my heart she just give me a look of don't be silly. It was only after pots syndrome was brought up from go etc. I think most doctors even cardiologist know enough about the effects of pots syndrome. It sounds like siezures are rare with pots but definitely does happen to some people I suppose. 

  2. I have yet to be diagnosed as waiting for tilt table test. My GP said my symptoms sounds like lots, also a cardiologist and neurologist. But here in UK long waiting times to have these test! I get these if I'm on my feet too long, I can't even speak properly when this happens, my speech is slurred it's so scary. I just couldn't find this as a common problem with pots online. The stairs are my worse enemy, if I climb too many stairs a siezure will come. 

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