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Kerry Sue

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About Kerry Sue

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  1. Are you saying that POTS symptoms nearly resolved for you after addressing the low B12? I got my lab results back last weak and I am low in vitamin D. I was low in iron and ferritin but those are slowly coming up with time. I had a hair analysis that shows I am low in minerals as well. I had severe low potassium in June and borderline low sodium. I have a few hormones that are unbalanced also. My DHEA is high and my DHT is high. I am working to get all of this balanced out... just hanging in there the best I can in the mean time. I pray everyone is doing well.
  2. That is very easy to do when we are so desparate to find an answer and get back to living a normal happy life! I hope you can figure out whats going on and fix it. 🙂
  3. Absolutely! Thank you, I am willing to do anything to feel better. I found this exercise program online tailored specifically to POTS patients. I don't know if it is well known or not but here is a link to see it. If it helps someone to improve their health then I am happy. This is the link for anyone who might be interested. http://www.dysautonomiainternational.org/pdf/CHOP_Modified_Dallas_POTS_Exercise_Program.pdf
  4. @Pistol and @Outaker My appointment yesterday went well I guess. I did show my cardiologist the blood pressure and heart rate readings I have been keeping while lying and standing. He agreed that my heart rate readings showed a big increase upon standing. He recommended that for 2 months I ride a stationary bike 30 min a day to strengthen my leg muscles. I was also given a prescription for compression stockings. The cardiologist told me back in May that he thinks my increased heart rate is due to deconditioning. That seemed to be what he still thinks now. However, he told me that if doing this physical activity for 2 months brings no improvement to any of my symptoms he will refer me to an EP doctor for further testing for POTS. I am going to comply the best I can and hope for some improvement. I just wanted to give an update. I hope y'all are having a good day.
  5. Thank you. I am getting a list of questions and concerns ready for my appointment so I don't miss anything. I appreciate the tips.
  6. Wow, I never thought that it could be viral. Thank you. That is something I need to look into.
  7. Hi, today is my first day being here. I am a 31 year old female. I am new to POTS and I don't have an official diagnosis. I believe I might be dealing with POTS. My issues started in January of 2019, with mild hypokalemia and frequent PVCs. Before this I felt perfectly normal. I did have increasing fatigue but I chalked it up to the lack of activity and being overweight. I took a trip to the ER because the PVCs were very bothersome. I was treated for esophagitis and anxiety and sent on my way. Over the next few months I noticed that a lymph node on the right side of my neck was enlarged and had been present for more than 8 weeks. I had an ultrasound done with normal results. The swelling does not respond to antibiotics and is still there to this day. I started developing nightly episodes of tachycardia that would wake me up out of sleep and I had to sit up and try to get my mind on something else while I waited for them to calm down. These episodes became longer and more frequent. I have had 4 more trips to the ER from April to June. Each trip with more severe symptoms. My heart would pound and race at rest and be much worse with even the smallest bit of activity (90s at rest and 130s just standing), horrible tremors, extreme fatigue and muscle weakness, light headed and dizzy upon standing and rising blood pressure. Blood tests reveled critically low potassium, 2.6 at the lowest, low iron and ferritin. I was currently taking Metoprolol 25mg twice daily and Hydrochlorothiazide 25mg once daily for elevated blood pressure due to poor diet and being overweight. My beta-blocker was increased to 50 mg twice daily and changed from fast acting to extended release. My PCP and I both agreed that I should stop the diuretic. At the time I believed that was the root of all my problems. As of my last blood test my potassium has returned to normal ranges and I am taking 65mg of elemental iron to treat the iron deficiency. I did not have anemia, my hemoglobin, hematocrit and RBC count were all within normal ranges. Although my Mean Cell Volume was starting to drop. After being treated and working on all these things I only had slight improvements. My blood pressure drops when I stand up and sometimes rises when I stand up. There is a lot of fluctuation in my blood pressure depending on my posture. It is normally with in good ranges when I am laying down not moving. The only symptoms that improved were the fatigue and the pounding heart, and it is only slight improvements. I still have the increase in heart rate when I stand or do anything other than sitting or lying down. I still have tremors that wont go away. My chest is constantly tight and heavy. Exercising is difficult and I become very short of breath. I have left sided fatigue and numbness with left sided chest pain that comes and goes through out the day. My vison is blurrier than normal. I don't have much of an appetite (I cant tell if this is a symptom or if it is because I am scared). I have a lot of bloating with loose bowel movements and constipation that alternate. My symptoms seem to be more pronounced in the mornings. I am so frustrated and everyone I speak with is very quick to dismiss my complaints as psychological ailments, and that I am doing this to myself. I have had numerous EKGs, Treadmill Stress Test, Echocardiogram, and a Coronary CT Angiogram. All unremarkable. My thyroid function was checked and the only abnormality was a sluggish T3. I had one short episode of AFIB in 2016 and that was the one and only time that has happened. I don't know what to do or where to go. I have another Cardiology appointment tomorrow and I am going to address these issues with him. I know only doctors can diagnose but does this sound similar to POTS? I appreciate any help I can get navigating though this. Thank You!
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