aljanny

@Pistol I'm glad you were able to get that regulated! I've been seeing the term hyper-pots around the forum, but I'm not sure what it is - hyperadrenergic pots? Also, does POTS often run in families like that?

Thanks! I will be sure to update after I see my neurologist next Tuesday. I'm weirdly fascinated by this, especially since I just can't seem to find anything like it in any of my searches. Even searching 'dysregulation of blood pressure' and 'blood pressure dysregulation syndrome' didn't bring me too much, except that it seems to be something that usually presents in elderly folks who already suffer from hypertension (I'm 28 and despite my sudden drops and spikes, my blood pressure isn't either high or low at its regular level) or people with a specific glaucoma condition (pretty sure I don't have glaucoma, and the symptom list didn't match too much anyway.) I don't get the headaches you spoke of, kiminorlando, but maybe your spikes are higher than mine? Though (from my brief skim) it seems like the connection between hypertension and headaches is quite a heated debate. But wouldn't be surprised if it ended up being related somehow - dysautonomia seems to be able to mess with so many different things.

Hi, all! I'm new to this forum, and new to a dysautonomia diagnosis (still in the process of figuring out specifics, but specialist seemed pretty certain from the initial exam.) She asked that I record bp and heart rate sitting and then standing every morning for 2 weeks. When I sat down to type up my log in prep for an upcoming appointment, I noticed some readings that were in orthostatic hypotension range and also some readings that were in orthostatic hypertension range. (Also one reading where heart rate jumped into POTS range.) In the more normal-person range readings, they were almost evenly split between whether the bp rose or fell. Obviously, my neurologist will likely be able to answer this when I see here, but I'm really quite curious about it. Have you heard of orthostatic hyper and hypo tension appearing in the same person? The only information I could dig up was about dysautonomia patients who have supine hypertension paired with orthostatic hypotension.