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About gypsy

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  1. I probably should add that these "surges" happen virtually every night after 5-6 hours of sleep. If I go back to sleep, they typically happen again about 1.5 - 2 hours later. Also, in case it is helpful/informative, my resting HR is about 60.
  2. Hello. I am new here, so please advise if this is not inappropriate somehow. For four years, I have been waking up after 5-6 hours of sleep with what feels like a surge of adrenaline causing my heart to race (and sometimes accompanied by an uncontrollable need to stretch my upper torso). I've seen multiple doctors trying to find a diagnosis. I've been evaluated for everything from seizures to PTSD to sleep apnea to restless leg syndrome and many other conditions, but still have no diagnosis and no treatment. It is not a panic attack.....unsettling, but no panic involved. Could someone please describe for me what it feels like to have the adrenaline surges many POTS patients seem to have? I have a lot of symptoms that are perhaps related to dysautonomia (e.g., Sjogren's, Hashimoto's, and other autoimmune disorders; PVCs and PACs and what may be short runs of tachycardia; fatigue; etc). However, I don't really have what seems to be the hallmark symptom: dizziness going from sitting to standing, but I do have low blood pressure; the bottom number is usually below 60, and I get woozy if I bend over and try to stand up quickly. Does this sound like dysautonomia is is a possibility? Thanks so much for any insight/advice.
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