Oakley

Thank you for all the advice and support! I’m truely grateful!

I have not been diagnosed with anything related to PCOS. Mostly just boring stuff like CFS, chronic pain, acid reflux. Doctor kinda just shrugged and put me on the BC. I have an IEP for my anxiety disorder that includes some accommodations for dysautonomia and other illnesses but I’m not confident in my teachers reading or even knowing about it. I used to do homeschool but it didn’t work out well and I had little-no interaction with humans.  

Thanks for the advice. I’ll ask my doctor about PCOS. 

Hi! I’m a new member. Im going to enter highschool in early September. I was wondering if anyone has any advice for managing symptoms in school while maintaining grades (I’m in a really competitive program)? Luckily I have only fainted twice in the past so I’m not too worried about that. 

My main symptoms: (lots can be attributed to dysautonomia and coexisting conditions)

• Fatigue with a side of Brain Fog
• Tachycardia and bloodpooling with poor circulation 
• Vision loss when standing up (tunnel vision, spots, all that great stuff *rolls eyes*)
• Mobility
• Chronic Pain
• The horrid week long periods (often have to miss a week of school or end up bleeding through pads/clothes)
• Extreme photosensitivity (painful rashes from direct sun exposure that disappear within the hour, eyesight problems)
• Nausea and vomiting/reflux no matter what I do or eat 🤢🤮

What has been recommended to me:

• Bring Advil, toothbrush, toothpaste, mouthwash, sunglasses, salt tablets, Rolaids, and a drink everywhere I go (I already do this)
• Not doing the traditional PE courses (I’m doing swimming and trying out aerial acrobatics)
• Consider a wheelchair to reduce symptoms and increase mobility (only for long periods of standing/walking or bad days)
• Get a cane/walker to lean on and stabilize my gait
• cover my skin (already do this in summer and sunny days)
• record classes and keep a planner of all class/homework 
• BC pills to stabilize and help my periods (doctor put me on them last month)

Thanks for taking time to read and maybe reply to this.