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About Oakley

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    Oregon, USA

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  1. Thank you for all the advice and support! I’m truely grateful!
  2. I have not been diagnosed with anything related to PCOS. Mostly just boring stuff like CFS, chronic pain, acid reflux. Doctor kinda just shrugged and put me on the BC. I have an IEP for my anxiety disorder that includes some accommodations for dysautonomia and other illnesses but I’m not confident in my teachers reading or even knowing about it. I used to do homeschool but it didn’t work out well and I had little-no interaction with humans. Thanks for the advice. I’ll ask my doctor about PCOS.
  3. Hi! I’m a new member. Im going to enter highschool in early September. I was wondering if anyone has any advice for managing symptoms in school while maintaining grades (I’m in a really competitive program)? Luckily I have only fainted twice in the past so I’m not too worried about that. My main symptoms: (lots can be attributed to dysautonomia and coexisting conditions) Fatigue with a side of Brain Fog Tachycardia and bloodpooling with poor circulation Vision loss when standing up (tunnel vision, spots, all that great stuff *rolls eyes*) Mobility Chronic Pain The horrid week long periods (often have to miss a week of school or end up bleeding through pads/clothes) Extreme photosensitivity (painful rashes from direct sun exposure that disappear within the hour, eyesight problems) Nausea and vomiting/reflux no matter what I do or eat 🤢🤮 What has been recommended to me: Bring Advil, toothbrush, toothpaste, mouthwash, sunglasses, salt tablets, Rolaids, and a drink everywhere I go (I already do this) Not doing the traditional PE courses (I’m doing swimming and trying out aerial acrobatics) Consider a wheelchair to reduce symptoms and increase mobility (only for long periods of standing/walking or bad days) Get a cane/walker to lean on and stabilize my gait cover my skin (already do this in summer and sunny days) record classes and keep a planner of all class/homework BC pills to stabilize and help my periods (doctor put me on them last month) Thanks for taking time to read and maybe reply to this.
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