Hi! I’m a new member. Im going to enter highschool in early September. I was wondering if anyone has any advice for managing symptoms in school while maintaining grades (I’m in a really competitive program)? Luckily I have only fainted twice in the past so I’m not too worried about that.
My main symptoms: (lots can be attributed to dysautonomia and coexisting conditions)
Fatigue with a side of Brain Fog
Tachycardia and bloodpooling with poor circulation
Vision loss when standing up (tunnel vision, spots, all that great stuff *rolls eyes*)
Mobility
Chronic Pain
The horrid week long periods (often have to miss a week of school or end up bleeding through pads/clothes)
Extreme photosensitivity (painful rashes from direct sun exposure that disappear within the hour, eyesight problems)
Nausea and vomiting/reflux no matter what I do or eat 🤢🤮
What has been recommended to me:
Bring Advil, toothbrush, toothpaste, mouthwash, sunglasses, salt tablets, Rolaids, and a drink everywhere I go (I already do this)
Not doing the traditional PE courses (I’m doing swimming and trying out aerial acrobatics)
Consider a wheelchair to reduce symptoms and increase mobility (only for long periods of standing/walking or bad days)
Get a cane/walker to lean on and stabilize my gait
cover my skin (already do this in summer and sunny days)
record classes and keep a planner of all class/homework
BC pills to stabilize and help my periods (doctor put me on them last month)
Thanks for taking time to read and maybe reply to this.