Karenc

Hi everyone I hope you are all doing well, I was hoping that I could get some help from people who will understand as it seems no one understands how debilitating this condition is and how frustrating it is waiting to be diagnosed. I finally got referre to a neurologist who referred me to the autoimmue neurologist after 6 years of dizziness, vertigo, neck and body pains, palpation and migraines also with balance and disorientation especially when driving at night. I had tilt tests 6 weeks ago and I feel so frustrated because I still haven't heard from the consultants to confirm the results, as I work in the nhs I managed to get a copy of the test report which stated that my pulse on tilt increased 30bpm and I had blood pooling in feet and respiratory sinus arrhythmia. . This sounds like POTS to me--did anyone have similar TTT results and get diagnosed with POTS? I'm so worried while waiting. Thank you for reading Karen