Gingergal
-
Posts
2 -
Joined
-
Last visited
Content Type
Profiles
Forums
Events
Resources
Physicians
Member Stories
Information Resources
Links
Posts posted by Gingergal
-
-
I’ve been bedridden for 2 years now. It started out with having Lyme disease and then I developed POTS without knowing it. I don’t really have a good doctor, and I don’t know what to do r get myself moving again. I suffer from daily dizziness, and can’t walk on my own. I use a wheelchair when I go out, and stay home in bed most of the day. I don’t know how to exercise if I’m so weak. My doctor told me to use a recumbent bike, but I nearly passed out. How do I get myself to a point where I can use a bike, and hopefully walk soon? I’m really scared about my condition just worsening as the days go on. Any advice is appreciated. Thank you.
Bedridden and need exercise help
in Dysautonomia Discussion
Posted
Thanks everyone. I know the longer I’m in bed the worse it gets. I just don’t know what to do. I’ve seen a few cardiologists, but they’ve never actually helped me, just said “yup you have POTS”. I’ll look into getting a PT at home. I didn’t know there were people that did that. I do my best to flex my legs in bed. I get scared when I stand, because I used to faint easily. I know I need to get past that fear. I’m gonna do my best. Thank y’all.