Hi, and thank you for responding! No official dx yet other than it looks as if ANS is messed up. Endo & other docs ruled out pheo, thyroid, adrenal stuff, potassium deficiency. Had neuro tests where they hooked me up to a BP cuff and had me do all this breathing stuff and stand up for five minutes, but they didn't tell me anything (yet). They wanted me to do an EEG with lights but I am not comfortable with that because I looked up this test and apparently some people get really traumatized by the strobe lights; have you heard of this? I don't want my ANS to get any more stimulated than it already is! Cardio gave me Metoprolol a few days ago because I was concerned about the heart rate (he isn't) - I finally took literally a crumb of it yesterday when HR went over 100 and was taking a while to come down (after shopping and putting away groceries - everyday stuff, right?) and it knocked me out. It's tricky about how to take it because some days HR is just fine. Also, I researched the Met. and discovered it's "selective", meaning it's designed to affect that heart more than other parts of the ANS . . . I'm thinking maybe I need a "non-selective" type since my sx are not just cardiac. I've read a lot on here about low blood volume and compression hose - how did the docs dx that? I have no idea if I have it. I have definitely upped my fluids, though, and I have never been much of a water drinker. When you say it's hard to get out of bed - is that because of fatigue, pain, or what? Apologies for all of the questions; I am trying to figure out what goes on with this type of stuff. Like, what exactly happens in a relapse? Feel free to PM!