Helloworld

Thanks a lot for your advices ! Sorry for my late answer, I thought I would receive notifications and I didn't. I live close to Germany, but I don't speak german. If I'm lucky I'll find a doctor who speaks french or english

Hello guys, I'd like to share my struggle with you, to know if anyone is going through the same kind of things. I feel quite alone with my disease, and this loneliness is really affecting me. I've been diagnosed with dysautonomia 2 years ago because I was lucky enough to find a good doctor, but I have been sick for at least 15 years (it just got worse). But even if my doctor have been able to diagnose me, he doesn't know much about dysautonomia. Most french doctors barely heard the name before, and a lot doesn't even consider it as a disease (they say it's psychological). I've read "The dysautonomia project", and talked about it to my doctor. None of the relevant tests for dysautonomia are avalaible in France. I have a huge number of symptoms, but no way to know what is really going on in my body. Hospitals could do the tilt table test, but to access it you need to prove that you're sick... with tests that doesn't exist here... This is so silly. And when I talked about taking more salt or about some blood flow issues mentionned in the book, my doctor said things like "don't do this, it's too dangerous !" or "I don't believe it at all !". It's really confusing for me. I managed to get better during the last few months thanks to chinese medicine, naturopathy and other alternative medicines, and by becoming a freelancer and working from home (I've become unable to manage a normal job.) Can anyone relate to it ?