gh0st

Thanks for the info, it’s very helpful! When did you first find out about about POTS? I’ve only learned about it these several years but I’ve had this symptom for two decades. Just didn’t have any luck in finding a diagnosis nor getting a good doctor. Do you have a good doctor for your condition? Best of luck to you!

Thanks for the suggestion. I do have blood pooling in my legs according to my ultrasound results (reflux, no DVT). Perhaps the acrocyanosis is another issue that I have. I can still walk around fine, but lately there’s a little discomfort in my left lower leg so I just really want to get to the bottom of things to find out what’s going on.

Hello p8d, thanks for the advice. I’m actually trying to find a pair of good compression stockings online at the moment, do you happen to have any suggestions on brands and types? I read somewhere that the ones that go all the way to your waist work better. How often do you wear them and how have they helped you? How long have you been wearing them? Did it reverse some of the symptoms or it’s preventing them from worsening? Thanks in advance!

Thanks guys for the replies! They are very helpful. I’ll try to do the Poor Man’s tilt table test at home and update you here. My symptoms are all more serious before my period too! Does it have something to do with hormones? I know that the adrenal glands release hormones that maintain metabolic processes such as blood sugar level and blood pressure; they also regulate inflammation and the balance of salt and water, control responses to stress... etc.

Hello everyone, I’m new to the forum. I haven’t been diagnosed by a doctor yet but have been having this issue since I was a teenager. Recently I came across POTS on the Internet and realized that I have some of the symptoms of POTS. When I was 15-16 (now in my mid-30s) my legs started having mild discoloration (red) after shower. Few years later, it became discolored 15-20 minutes after I stood up. And throughout the years it’s gotten more serious: they turn purplish now even when I sit down. But whenever I lie down, they turn back to normal. I went to a cardiologist and he ran some ultrasound tests on my legs. The blood flow is slow but it shows no plagues. My blood work is all normal. I have low blood pressure though I have never done a tilt table test. When I was younger, I would always experience dizziness when I stood up too quickly but I have never fainted. These days I experience the same thing only few days before my period. I also get a shaky if I don’t include meat in my diet (however I’m not diabetic according to my blood work; my mom is diabetic and does get shaky when she doesn’t include meat in her diet). Over the years the issue has always been ignored by some doctors (who, I believe, have no clue what’s going on) while it had always been more of a cosmetics issue to me when I was younger, now I worry that it will lead to serious issues like amputation later on in life if I don’t do something now. I’m glad I came across this forum as it’s very informative. Again, I still have not been diagnosed to have POTS but I m eager to hear if anyone here has similar symptoms or know of anything related to poor blood circulation in the lower extremities. Thanks in advance!