electricpower177

On 12/02/2012 at 6:58 PM, ~Naomi~ said:

I do too - even when it's not beating fast, it feels like it's beating hard. I think it's POTS.

Hlo julie i have exactly same symtomp,eveb while having a pulse rate of 70 it gives a thumping feeling in heart..

Im from india and i didnt even knew i have been sufferinng from this deliberating condition  from 4 years until i researched intensively about it online,when i came to know about it i told my doctors,parents (who think that im lazy and clumpsy etc.I tell u they are most awful parents ever !!whom have lots of pareting problem) about it and said "look plz i have pots"then they just laughed and mocked me by sayin ur just anxious or anemic or blah blah!! Im just wayy too annoyed that even giant heart and neuro specialists doesnt know anything about it. It feels like im left alone and helpess where no one cares how bad my condition is since my ecgs,blood tests,echos are normal they think im fine and am just gone insane,i told my doctor to run me a tilt table test but she didn't allow me to.

I have had headaches after diagnosis of my pots too especially if im at school and specifically at afteroon(the burning sun),it feels like u wrote my story!

Sure these headaches are caused by pots becoz pots leads to poor cerebral blood flow and heart palpiations which causes cramping in carotid arteries(these arteries passes through two sides of your neck to supply blood to brain) and in ur head too.I get headaches too everyday...they are very irritating

7 hours ago, bombsh3ll said:

My symptoms fit yours and I have a diagnosis of POTS by one of the few POTS experts & researchers in the UK. My heart doesn't race at rest though. When I first became unwell I had electrolyte disturbance too - low sodium and high potassium. At the time this was attributed to having been started on an SSRI antidepressant (GP thought anxiety, I was sure POTS but took them due to evidence showing benefit in some with POTS, sadly not me), but I was later found to be producing virtually no aldosterone. This is the hormone that keeps salt (and water) in the body and lowers potassium, hence the electrolyte imbalance and low blood volume. 

In which direction were your sodium and potassium numbers off? Maybe look into seeing an endocrinologist and getting your adrenals tested (including aldosterone).

I have normal cortisol BTW so not Addisons. 

 

 

My electrolytes are normal as follows:-

Serum sodium=139 meq/l

Serum pottasium 4.0 meq/l

Serum chloride=100 meq/l

23 hours ago, yogini said:

I would not guess about whether you have hyper POTS or not.  But if your HR shoots up and stays up when you continue to stand for prolonged periods, this means you likely have POTS.  I would ask your doctor for a TTT or switch doctors to someone who knows more about dysautonomia.  Most cardiologists don't know enough

Im pretty sure i have pots,heart rate goes like crazy on stading up for everytime,one time i passed out almost in my bathroom it was horryfing though,i also get random tachycardias,fatigue,dizzines throught all day which no amount of sleep or food can fix.Dysautonomia can lead to both p.o.t.s and i.s.t🙄

26 minutes ago, yogini said:

Have you had a tilt table test?  That is the best way to figure out if you have dysautonomia.  Or you can measure at home if you tend to have a sustained increase in HR or decrease in BP upon standing.   For many POTS patients all tests come back normal other than the tilt table test.  You can try to get an appointment with one of the POTS doctors listed on the site.  

I did it myself at home and bp and pulse rate both shoots up dramatically ...so i might be having hyperadregenic pots...i suppose!

So i have POTS and probably innapropriate sinus tachycardia,the problem is while lying on bed i fell strong,throbbing pulse in my chest,wrist,fingers,neck etc and can calculate my heart rate without even putting my fingers on wrist as my whole body feels and hear every ******* beat and even all day when im sitting or relaxing i have strong beat in my chest thats bit discomforting..My blood pressure and pulse rate however remains normal.

ARE THESE SYMTOMPS REALTED TO POTS AND IST??

6 hours ago, MomtoGiuliana said:

I have Hashimoto's thyroiditis.  It may be unrelated to POTS, but when my thyroid levels are off it can set off POTS symptoms, for me, at times.  I can have low potassium (slightly low).  My specialist says that some women are prone to this.  Again it may be related to POTS, for me, or may not be.  It does seem though that when POTS acts up, for me, my potassium is slightly low.  My doctor has also said to be careful not to over-do salt intake bc it can cause wasting of potassium.  I have had some low sodium readings at times too that no one could explain.

Yes it is common for patients with POTS to be misunderstood as lazy or clumsy.  It's considered an "invisible illness"--b/c the patient may appear to be well but feel very poorly.

 

What were ur electrolyte levels plz tell?Adrenal fatigue also causes pots,i read somwhere and has fluctuating symtomps mainly of electrolytes.

Btw whts ur age and gender?And how is ur life going with these problems?What r u pursuing?

1 hour ago, MomtoGiuliana said:

Welcome to the forum.

I was diagnosed with POTS in 2003--your symptoms sound consistent with my experience.  I was diagnosed after a Tilt table test.  Prior to that I had the tests you list and they basically came back normal.  I had some odd electrolyte imbalances and I have thyroid disease which complicated the situation for me.

Here is some overview information about POTS:

https://www.dinet.org/content/information-resources/pots/pots-an-overview-r95/

Postural orthostatic tachycardia syndrome is defined by excessive heart rate increments upon upright posture. A person with POTS will experience heart rates that increase 30 beats or more per minute upon standing and/or increase to 120 beats or more per minute upon standing (Grubb, 2000). These exaggerated heart rate increases usually occur within 10 minutes of rising.

You can find more information under "Information Resources" in the menu at the top of our page.

 

How do u get thyroid problem pal?and odd electrolytes like sodium and pottasium are caused by adrenal gland or kidney disorder i suppose.U know my friend no one understands my situation everyone used to call me lazy or clumpsy even my parents..its so painful..😢😔

I have following symptoms since 5 years right now im 20 yrs old:-

1.dramatic increase in pulse rate on standing from lying position,black vision and foggy brain sometimes.

2.heart palpitations on climbing stairs or running

3.exercise intolerance

4.unexplainable random tachycardia.

5.extreme fatigue all day.

I went to a cardilogislt recently and he did ECGs,doppler echocardiography,24 hrs holter,thyroid test,cbc,electrolytes test,urynalsis and everything came back normal.My b.p is normal and my bmi is 21.7.

Is there anyone here with these symptoms who was diagnosed with POTS or IST?