WreckingHotelRooms

For over 3 years now and getting worse, I have been living constantly feeling stimulated. It's like 1,000 cups of coffee. (it's a lot more extreme). I've spent thousands in the UK trying to figure this out, MRI, CT scans, GPs. The doctors were quick to blame mental health which I guess has probably happened some of you, they have tried 15 medications, everything from Depakote, to 800mg Quietapine to Lithium all with no effect what so ever. None of these could stop this 'wired and tired' pendulum I am on. Beta blockers can help the shakes but nothing helps my symptoms more than 1.5mg Clonazepam, which I was given after 4 days no sleep, as Zopiclones doesn't make me sleep either. This is the first time in 3 years we have something that helps. So now I am working backwards trying to figure out why, for a while I have been look at nervous system because of my symptoms and I guess if it's POTs/Dysautonomia it kinda is (from what little I know, my GP doesn't know much about POTS). My question is, can POTS be this/does this sound familiar? Main symptoms (got 20 other ones); Feeling stimulated (constant, sometimes extreme) Dilated pupils (rarely when I crash these go back to normal) Not sleeping for days (up to 10 days in a row confirmed in A&E in London) Tremors hands and legs (weak and shaky on my feet)* Excessive sweating & fevers (when it's really kicked in) Adrenaline rushes, followed by anxiety (depression too) Easily over-stimulated – Just doing simple tasks can send adrenaline and make me feel out of it Bladder shrinkage (when stimulated) Weight Gain Fatigue Side note: I got a catecholamines test, my results were Noradrenaline 240nmol (range was below 573) Dopamine 1590nmol (range was below 3270) Adrenaline 102nmol (range was below 147) Also anyone had a Urine Adrenaline, if so what was yours? (i has expecting mine to be through the roof as that's what it feels like) Many thanks, this has ripped my life upside down. Ps, I do have a private Tilt test coming up but it's months away, so far away I don't even have a letter yet.

Your story is my story. Least your symptoms. Have you got anywhere? I've after 3 years searching, found out about POTS and Dysautonomia, getting a diagnoses is hard as they first went down the bipolar route, which it turned out not to be, due to like you, a range of symptoms, I match all 40 that i've read on Dysauntomia. I just signed up, I just found this post because i've endlessly been searching 'Wired, Stimulated' your: Feeling wired/constant stimulation: I feel as though I am on 2 pots of coffee or Adderall all day. This feeling never leaves and was one of my first symptoms. IS EXACTLYYY (i can't believe this) how i feel ALLLLL DAY, i feel so wired to the moon, no drugs they could chuck at me, Lithium, Benzos, Depokote, Quietapine etc can bring this down... So can anyone confirm this is Dysautonomia me and the OP are talking about? Also OP, have you made any head way? All the best, hope to hear from you. EDIT: wow, your story is mine, down to the Remeron, everything at the start, the weed, the LOT! someone must know. At the start I thought I had Depersonization, now it's just a part of a much bigger picture, this wired thing is not part of that at all, i know from many physiatrists, being on many forums... I now realise Depersonization can appear in POTS. Right now it's this Wired and never needing sleep/fatigue killing me most.. the shakes aren't fun either. I'm also 26!