Aqua4fun

A heartfelt hello,

  I am curious as I discovered that since I started wearing a Wahoo halter paired with SweetBeatHRV app

that I rest comfortably at 60-70 then carefully up to do a thing or two- I go right up to 120 +.

so I am wondering with watching all my Sympathetic spikes ( even at rest) that it may be Hyperadrenergic POTS!?

has this been considered for your symptoms?

Apparently there should NOT be a TTT test for H. POTS but blood/urine work....

So now past Thursday nite I had hyper emesis and awoke on Black Friday with Tachycardia 185 unable to bring it down

(watched a U-tube real quick like)

Then I called 911. 

Stabilized per ER standards - given Diltiazem. And yes I advocated for IV Saline which wasn’t in the ER plans. 

But now back at my Airbnb (lol traveled to an Fayetteville, Arkansas Neurological Clinic to deal with my CRPS)

I am uncertain of my condition/meds given at ER. I did fill the script as I researched it is used for (off-label)

tachycardia. Took it last night slept well until my 3am spike woke me up.

so many types of POTS and being able to read others notes/sharing is such a gift in itself,

thanx for listening and looking forward to being home, xox

Hello, newbie to this awesome site💛  and truly just am on a huge learning curve here....

that being said I never knew what was crashing me for years.... and I am a RN BSN.

my journey has been filled with blessings as I am still here and I find that comforting.

so let the learning begin as I suspect I am a H. POTSie.

This November I invested in a Wahoo monitor paired with SweetBeatHRV app 

and am beyond words looking at my screens.

I have lived flat for the past 5 years unless 

I was in our local community pool 5x week (deep compression) & local Ayurveda education/self-care Center.

CRPS/bilateral neurogenic Thoracic Outlet Syndrome was my diagnosis —I was just flat.

Never diagnosed as a POTSie until this April by my osteopath. 

So yes very glad to be here.

thank you for all the sharing,

xxo

Hi I am a newbie💛

‘I have been using sound reducing headphones & hats/caps/visors. Overstimulated by car travel unless just a few miles.

wow I am just figuring It all out. Ty for this post