27 Elephants

I'm wondering if anyone has seen any doctors that were helpful at Cleveland Clinic?  I'm thinking about getting a referral to be seen there and would like to see a doctor that specializes in POTS.   I have POTS and suspected (autoimmune?) neuropathy, but the cause is unknown.  I live in MN, but the Mayo Clinic denied me.   Thanks in advance!

Can I ask who (or what type of doctor) evaluated your hypermobility.  What specialized clinic did you go to?  I have POTS and suspect EDS as well, but am not sure who can evaluate it.  

Hello everyone, 

I'm new to this group.  I was diagnosed with POTS in August of this year.  I also suspect small fiber neuropathy as I've had severe burning chest, back, hands, and feet pain.   I'm waiting to see a cardiologist at the University of Minnesota.  I have no treatment plan or further workup at this point.   I asked for a referral to the Mayo Clinic in Rochester and was denied!  I'm not sure why I was denied.

I'm wondering if anyone has any recommendations on a clinic that does a thorough workup for POTS?  I suspect an autoimmune cause, but the rheumatologists I've seen are unaware of an autoimmune dysautonomia panel.   I'm willing to travel, I just really want some answers from doctors who are very knowledgeable about the workup and causes of POTS...

Has anyone had luck and the University of Minnesota with getting a thorough workup?

Thanks in advance for any advice!