27 Elephants

I'm wondering if anyone has seen any doctors that were helpful at Cleveland Clinic? I'm thinking about getting a referral to be seen there and would like to see a doctor that specializes in POTS. I have POTS and suspected (autoimmune?) neuropathy, but the cause is unknown. I live in MN, but the Mayo Clinic denied me. Thanks in advance!

Can I ask who (or what type of doctor) evaluated your hypermobility. What specialized clinic did you go to? I have POTS and suspect EDS as well, but am not sure who can evaluate it.

Hello everyone, I'm new to this group. I was diagnosed with POTS in August of this year. I also suspect small fiber neuropathy as I've had severe burning chest, back, hands, and feet pain. I'm waiting to see a cardiologist at the University of Minnesota. I have no treatment plan or further workup at this point. I asked for a referral to the Mayo Clinic in Rochester and was denied! I'm not sure why I was denied. I'm wondering if anyone has any recommendations on a clinic that does a thorough workup for POTS? I suspect an autoimmune cause, but the rheumatologists I've seen are unaware of an autoimmune dysautonomia panel. I'm willing to travel, I just really want some answers from doctors who are very knowledgeable about the workup and causes of POTS... Has anyone had luck and the University of Minnesota with getting a thorough workup? Thanks in advance for any advice!