Seriouslyjen

They wanted me to start my treatment before my test but I waited until after. My heart rate went up by 60 beats per minute from lying to standing and I couldn’t even focus on anything I was so dizzy. Really surprised that they didn’t diagnose me based on that. And you’re right, it is absolutely barbaric. That was my first and last time doing that... that’s for sure! Thanks for all of your input so far!

My electrophisogist was thinking I may have a type of dysautonomia. He didn’t say specifically what he thought but he wanted me to start treatment now and confirm with a tilt table test. Through research I found out he was treating me the same way he treats pots patients. Increase fluids to 2-3L a day, increase salt by 3 palmfuls a day, start on a beta blocker, eat smaller low carb/high protein meals a day, and wear waist high compression stockings. My symptoms have been getting worse. Severe fatigue, muscle weakness, increase in heart rate when standing and doing any type of work, exercise intolerance, heat intolerance, headaches, shortness of breath, chest tightness with exertion, and on top of that I have IBS-D. I’m only 28, I shouldn’t be feeling like I’m 70. I did my tilt table test and that was terrible. When the iso was given, I felt like I couldn’t breathe. I was having severe difficulty getting a breath. My hands started to cramp shut and I couldn’t move them. They called the doctor in and he looked at them and thought it was weird. They were tingling from my forearms down and turned purple. I got tetany in my hands and calves and he said it was from hyperventilating and a depletion of potassium but has nothing to do with the test. It was very concerning for me and then I vomited like 4-5 times. Without medication my resting hr was 70s laying down and the highest standing was 130s which was positive. He said it looked like pots but could also be from dehydration. My other doctor came in and said my test was negative because I didn’t pass out. He said it could be my natural pacemaker is sensitive to adrenaline and he wanted me to start the treatment he set forth for me at my previous appointment. He didn’t give me a diagnosis which is frustrating because originally he wanted me to get a neurologist consult. I’m not a doctor but it looks like a standard case to me. What does everyone think? Is a diagnosis important? Should I wait it out and see him in 4 months like he wants or should I go ahead and follow my gut, find myself a neurologist and get a diagnosis and get to the botttom of it?