kc_77

I have a fraternal twin sister and her and I both have POTS. We have been showing symptoms for about 6+ years. We are currently 21, and showed symptoms at first around 13/14. We didn't even know we had it until i looked up why our legs tended to get molten and purple when standing and in the shower. The symptoms we have had are occasional dizzy spells (we've both passed out once) but now we are able to sit down when we know we will pass out. It doesn't happen often, thankfully. The only other symptoms we have are the increased heart rate, tremors, exercise intolerance (exp me) and heat intolerance (me) and i also tend to get tired easily when out and about but we are living completely normal, almost unaffected lives, which we are very grateful for. We are in the process of getting tested for EDS and other connective tissue disorders, because i know that can be a cause and is highly genetic, but i really don't think we have those. So has any other person has this same experience with having primary POTs running in siblings and families? Also, our maternal grandfather passed away from complications from Lupus, so could we just be susceptible to autoimmune issues? Thanks in advance!