Olayak

A tilt test alone will not diagnose you.  Good luck tho!! Yes, sometimes you need to find an expert! 

I have really bad POTS and had a normal tilt test.  So, no, it won't always show up on a tilt test.  Sometimes you need more than one diagnostic test.  The halter monitor showed that my heart rate jumps and my blood pressure drops.  I definitely have POTS.  One test alone is not enough.  Good luck, tho!

I stopped the florinef and the weight didn't go away. I now gained even more on the midodrine!I I went from 114 lbs, just 2 years ago to 143. That's insane. Same activity level except now I'm eating less.  It has to be the meds, right? With a new doctor's permission, I have stopped taking the midodrine, a few days ago,  but no weight loss yet. And I'm worried I'll start fainting again. 

On 1/4/2013 at 10:43 PM, westernmass said:

I've gained about 15 pounds... I assume from inactivity but not sure bc I also eat much less now but bloat a lot...

I've been continuing an exercise plan and hope to lose it. I was 114 when I got POTS and was 129 at last dr visit... I think I've dropped a couple but its hard to tell, I look skinny in the morning but pregnant after lunch

I was 114 before pots, 134 after taking florinef for a year. I eat super healthy and exercise. The weight gain is awful for me! 

Thank you! Doctor just started me on midrodrine 5mg 3x daily because I was still fainting daily despite taking the Florinef and Inderal. Hopefully if I take the midrodrine instead of the Florinef I'll go back to my normal weight! Glad to hear about your weight loss! What helped your pots symptoms? I can't seem to keep my blood pressure up (it keeps dropping too 75/45) and great rate down (even after meds it's around mid 90s often) 

I gained 25 lbs on Florinef and I stopped taking it for 6 months and I still didn't lose the weight! Help!