teacherdiva
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Posts posted by teacherdiva
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I admit it, I lurk too! I have to say that I haven't posted, because my story seems to pale in comparison to some of the challenges that many of you face. I use this site for information, and I am constantly checking for medical updates.
My POTS is mostly under control, but yet I am not symptom free. I have been able to control my POTS with diet and exersize changes, and I have even been off medication for close to 4 years now. I was diagnosed after finding myself flat on the pool deck and on the floor of the dorm bathroom in college! (I wanted to smack every doctor that asked me if I stopped eating or drinking fluid). I work full time as a teacher where I am on my feet all day. I would say that the time I spent with POTS symptoms was the absolute WORST pain, exhaustion, experience of my life.
I admire the courage you all have, and applaud you for having the courage to tell your stories.
Kristi
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Great Idea!
Allentown, Pennsylvania! (Hour north of Philly)
Kristi
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Danelle,
My heart goes out to you in this difficult time. The only silver lining is that at least you have a diagnosis at this point. It'll be a tough journey, but now that you know what he is fighting against...the doctors will be able to at least begin to try and help him.
Here's a quote that keeps me strong: "If God brings you to it, he'll bring you through it."
Exercise
in Dysautonomia Discussion
Posted
I'm not a doctor or anything, but I can offer you what I have learned from experience. Before I was diagnosed, I was a triathlete and a swimmer for a major division one school. All that has changed since my diagnosis, and it has been difficult because of my love of exersize.
I have found that I can still swim (but I need to be VERY careful getting out of the pool).
Running and biking can only be done indoors because I am extremely sensitive to heat.
If you like to run or walk and the humidity is bothering you, you can always do it in a pool. You still burn calories, still sweat, but it removes the gravitational strain on your body.
Water aerobics are another fun option that I use when I'm feeling up for it.
I hope that helps!