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Feeneyja

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  1. I was gluten free for my daughter who is gluten sensitive (NCGS) for three years and noticed I would get sick when I ate it occasionally. I underwent a gluten challenge for celiac disease. During my challenge, I became incredibly dizzy and had terrible constipation (among other symptoms). I only lasted on the challenge for 1 month. I did not test positive for celiac disease, but since the challenge is supposed to be 12 weeks long, it's really unknown if I haveceliac or not. In any case I now have the NCGS label too and went back to gluten free. With gluten free my symptoms have mostly gone. The dizziness is better but has remained a bit, mostly in the morning when I get up, when I eat, and when I'm tired. I have low blood pressure and noticed with the dizziness I would sometimes have heart palpitations. I started to pay attention to my pulse and noticed it would start at 52 and jump to 102 with no real exertion (in the morning) and that seemed to coincidence with the dizzy spells. I also noticed that sometimes it would go from the 102 high and then plummet to 62. I did some looking and found POTS. There seems to be an association with celia disease/gluten sensitivity. I'm wondering if anyone had a triggering of POTS with a gluten challenge? It's a bit frustrating and I had really hoped the dizziness would resolve once I went gluten free again. Or did I trigger something that I now need to deal with and won't really go away? I'm seeing my doctor today as a follow up and will ask him about POTS, but don't know if he even knows what it is. He checked my hemoglobin levels thinking I was anemic. It was 12.7. Normal (but low normal). I'm thinking of asking for a ferritin check. I have heard that low ferritin can affect POTS and it is also associated with gluten intolerance. Experience and suggestions would be appreciated.
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