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Brittni

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  1. I am! I signed up and booked my plane tickets last night. Hope there are other going
  2. Hey all! I decided to attend the 2017 Dysautonomia international convention this year. I was diagnosed with POTS, Gastroperisis and an Arnold Chairi malformation this last year. I am just wondering if anyone else plans to attend. I'm flying across the country to go and don't know anyone.
  3. Thank you for replying, I'm glad to know they can modify the test
  4. Hey everyone, just a short heath summary. I started getting sick 2 1/2 years ago after having my son. It started with daily fevers, weakness, gastropherisis constant nausea, aches and pains and racing heart along with chest pain. I went to several doctors and specialist Who couldn't seem to figure out what was going on. In April I flew across the country to go to the Cleveland clinic in Ohio. I had a tilt table test and was diagnosed with Nueropathic POTS, I also have an Arnold Chairi malformation of my brain which has contributed to my autonomic nervous system malfunctioning. Anyway I go back next month to have a QSART test done, an autonomic battery and a hemodynamics nuclear test done. I am terrified of the last test as I have a bad reaction to contrast. I was just wondering if anyone has had the test done and what to expect. Thank you for reading!
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