Hi,
I have IST and a heart murmur and have been suffering from unexplained chronic pain and neuropathy that is most prominent in my left leg. I have been tested for pretty much everything you can imagine. Recently I returned to the neurologist and he noted my resting heart rate was 140. I explained that every so often I have a very high heart rate at the doctor's and am urged to see a cardiologist but I'm always told that I am fine (minus the IST). This time, the neurologist ordered the crude version of a TTT and my results were resoundingly conclusive of POTs. He insisted on a TTT which I had. However, the results were strange. My heart rate was abnormally low that day (it is generally 90 lying down, 120 resting, and 140 moving around) and, while I passed out during the test, my heart rate only dropped to about 80 from about 110. They could not get a reading on my BP. I am at a loss because the cardiologist said she had never experienced this before and has no idea what I have. Has this happened to anyone here? I feel so lost because I know I have a neurological disorder due to the severe nerve pain and I have many POTS symptoms...
S
