Stacey615

12 minutes ago, redpenny11 said:

I live in Florida and while the humidity can be excessive , I feel so much better at sea level than even if I visit North Georgia. It seems like there is a bit of a struggle finding physicians who are Dysautonomia literate but it probably depends on where in Florida. If anything I feel better in summer and worse in a Florida winter….

Thank you this is helpful.  I feel Similar, when it hot out I'm not miserable. I'm just tired 

Hi, I live in the midwest and the seasons is a roller coaster for my POTS. We are considering moving to FL (gulf side) but im worried about humidity and such. I've been there for a week in July and August, I did get tired more easily but that's all 🤷‍♀️ 

I would appreciate any ideas / thoughts.

Thanks 

On 5/16/2017 at 9:37 AM, MomtoGiuliana said:

On days I feel particularly badly I find that drinking coconut water helps me.  It's expensive so I don't drink it every day.  But I find it more effective than water or Gatorade type drinks.  Adding more salt to my food helps as well.

I also try to keep moving as much as possible.  Lying down too much tends to only make things worse, for me, as poorly as I may feel upright at times.

You may want to search for "migraines" on the site, or post a specific question separately about migraines.

Welcome to the forum!

I may try the coconut water, not a big fan but probably better for me than Gatorade. Yes I am the same if i lay down to much u just feel even more yucky.

On 5/16/2017 at 10:22 AM, angelloz said:

It is nice that you can drink Gatorade. I think the artificial flavors trigger my migraines. I am going to try again because the sports drinks do make my body feel better. With weather changes I find just staying hydrated can help my migraines a bit.

I may have to watch that I didn't think about the artificial flavors.  Thanks for pointing that out.  Should find something else 

I am trying to figure out what has helped people.  I drink lots of water. I exercise as tolerated. Last week I started drinking 1 powerade a day to see if that will help, my migraines were so bad.

The migraines have been horrible when it's below 60 and rainy. 

Any suggestions?  

Thank you for the feedback. I had to stop working because my job was very stressful, which of course I miss it very much. But it does seem those things add up and your right they do cause set backs. I need to log that stuff, maybe I can see a pattern.

HI, I'm new to this forum. This is also one of my questions (the chronic fatigue) it bothers me so.   I take the Midrodine and Fludricordine (might be spelling those wrong). Today I feel amazing,I can do anything.  Yesterday I spent the day in bed and could hardly move. Is this typical for POTS? Its been like this for 2 years, roller coaster each day.

Also many of you have mentioned "getting POTS symptoms better". How have you been able to do that? I was diagnosed in Nov. 2015 and still haven't felt any better, only worse.  Any helpful tips would be great. 

I'm going to look into those natural herbs mentioned above as well.

Thanks