Ywilson9

@ringsmackie Hang in there. You are ever so close to getting answers, which will bring you so much peace and get you closer to feeling better. My symptoms mirror yours, except I have hypertension and not hypotension. I also have more symptoms that are not on your list. I am not sure what kind of TTT they are ordering for you, but I have had two different types of autonomic tests done at Mayo Clinic in Scottsdale. For the first TTT, I don't remember an IV whatsoever, I remember EKG sticky pads, pulse ox checks and a cool blood pressure monitor that took my blood pressure at every heartbeat. For part of the test they had me take deep breaths into a tube to measure respiratory function, and a part of the test where they put a heat pad and tried to measured any sweat into a collection device. The guy who performed the test was so nice, we had wonderful conversation and he played soothing music for me during the test. The second test they called it a Catecholamine screening where they were looking for elevated levels of adrenal production. For this one they did have to put and IV in and simply did a blood draw after 30 minutes of resting, and then 10 minutes after standing. From test 1, they easily diagnosed my POTS. From test two, they confirmed that my body produces an elevated level of epinephrine just from standing up. We are still searching for some answers on an auto-immune response that my body is having, but being diagnosed with POTS has actually brought some peace as weird as that sounds. I can stare at those list of symptoms and know that it is POTS causing them, which is much more comforting than the fear of the unknown. I read somewhere that 90+% of POTS patients are misdiagnosed with anxiety/depression before they diagnose POTS. In my case I really do have some anxiety and depression, but it is to be expected when a normal, healthy person gets their life turned upside-down by all of these symptoms that seem to come out of nowhere. I am seeing a great psychologist and that is helping me cope with these changes in my life.