fanelall

I used to be on Midodrine and I know its odd but I would nap in a chair. If I was really tired I would nap in bed with my pillows propping me up the best I could. That way I would never have to miss a dose. I know when I was in that stage of my POTS I couldn't miss a dose. It HAD to be every 4 hours otherwise I wouldn't be able to stand up. So napping in a chair or more upright protected me a little bit from pressures getting too high. Allison

Hi there, I have kind of a long story but was diagnosed with POTS about 6-7 years ago. About 4 years ago I stopped passing out, stopped needing Midodrine to get out of bed every morning, and stopped getting so dizzy. About 3.5 years ago I began getting these headaches. They ranges on the pain scale but lasted every day all day. The headaches eventually morphed into neck pain once again that ranged on the pain scale from 1 to debilitating and has lasted every day all day for the past 3.5 years. Also accompanying the neck pain was severe fatigue and vision changes. It hasn't been until very recently that I've realized no thanks to poor doctors that my neck pain and vast other symptoms was just my POTS morphing into a fun new debilitating experience. So, onto my question. For the nerve conduction testing what exactly would that show versus the skin testing? As most of the crummy pain management doctors I have seen have said "Well were pretty much out of options because it looks like you have tried everything". I guess I'm just curious if having a diagnosis through a positive skin test for SFN gets you additional treatment options. So far I have had bilateral nerve ablations, lidocane injections, trigger point injections, tried lyrica, cymbalta, gabapentin, tylenol, advil, lidocan patches, bengay, diclofenac pills, diclofenac topical, NORCO. I can say that noting makes the pain go away. I don't know if at any point some of these medications have helped in a little way. Currently I am taking Topamax and have had far fewer times where my pain has gone over a 5, but is that because of the topamax or because the flare ups have stopped? who knows... Allison