Amyschi

Hi, another question please. I have a history of ulcerative colitis, and in the last year have not taken my 5-ASA maintenance medication because it makes my dizziness, tachycardia, and weakness so much worse. This was a very bad move, as I recently tried to re-instate it and had a very bad reaction. I generally am unable to tolerate any kind of medication except Tylenol, which I have heard also is typical with dysautonomia, but has anyone had the experience where they cannot tolerate needed medications for other health conditions because of the dysautonomia?. I took it last night and woke up in an extra bad state, which all of you can understand is difficult to deal with on top of our "baseline" condition. Just thought I would throw it out there, in case anyone else has UC and has had this intolerance problem, and what they did to be able to continue with their medication. I have been hesitant to try the treatments for dysautonomia for this same reason, as everything I take makes me extremely dizzy; I would rather almost just deal with it on my own. Anyone else feel that way? I know it depends on how badly the condition is affecting you and what you are willing to tolerate. Thank you.

So sorry, I gave this post the wrong heading. Thank you

Hello everyone, This is my first post, so hope I am doing it correctly. I suffer from dysautonomia, with features of POTS, but my main problem is constant dizziness. I am just wondering how many out there have this as their primary symptom, even when you do not have low blood pressure with standing, but just whenever you try to move or do anything. I can have POTS, but then also many times do not have the tachycardia, but am just extremely dizzy with loss of balance. I have read in other information that vestibular problems are common with dysautonomia, and also that it can be due to the faulty circulation, but just wonder if others present this way. I am a 57 year old female who has suffered mainly from dizziness since age 23, and then five years or so ago the dysautonomia symptoms came on; i.e. the orthostatic intolerance. Just makes you wonder if it is two separate problems, very confusing. Thank you to all out there who share their time and stories. It certainly does help that one is not alone.