bluemoons

thank you so much for the info my concern was thinking I was wrong on having POTS. I have had a Doctor tell me I have it but with being told that the TTT was neg I am having a hard time getting into a specialist, they tend to read the result not the test its self. I tried getting into one about 2 years ago I waited 8 mo for the appointment and a month before they called and said he could not keep my appointment I would need to see someone else or wait another 8 months. I should have waited the extra 8 months. ended up with someone that did not know anything about POTS, so I hate to try this first one again. I am just so frustrated. but reading notes on here I see I am not alone, and I see that there is help out there, thank you all for sharing. I will keep at it.

Hi Everyone, I am not one to post but I have been trying to find doctors in Nebraska that can help with my POTS. my problem is the Doctor did not read the TTT right. my HR starts at 79 BP 106/63. first min is HR 104 BP 92/67 at 10 min HR 125, BP 94/73. As best as I can tell this is a positive test for POTS which my doctor from 3 years ago thought I had. but everyone keeps saying that my TTT is fine, so I am not getting any help and I can not get into any Doctors. I have multiple other problems Dizzy, Hurt all over, can't stay on my feet for more that about 5 min or my HR go's up and I have a hard time breathing. Any help would be great. I have taken the test into the Doctor and a print out of POTS. they just look at me. Thank for listening.