Hi, I'm Lisa, 30 yrs old, from the UK and I've been ill for at least 3 and a half years with no diagnosis. I just wondered if anyone could relate to my symptoms. Maybe they don't sound anything like dysautonomia/POTS but I am at the stage of giving anything a try! My primary symptom is a persistent feeling of sleepiness, where I would fall asleep at work back when I worked full time and would nap repeatedly at weekends. The only time I didn't feel sleepy was after about 7pm. I frequently feel a strong, inescapable urge to lie down, which I have sometimes had to do at inopportune times like on the floor when decorating an empty house! At these times I will usually sleep but it's such an intense feeling of weakness it feels more like i'm losing consciousness. By contrast at night I find it difficult to sleep, even if i've forced myself to stay awake all day. Then there's the lightheadedness/shaky feeling that i get when I try and do any kind of exertion, ie housework, gardening or going for a short walk. I have to sit or lie down to recover. I find that this is worse in the morning or afternoon, and I can be more productive in the evening (But not much). For the past 11 months I've had problems falling asleep, where as soon as I drop off my heart appears to 'stop' and jolts me awake. This sometimes happens multiple times before I can sleep. I thought this might be sleep apnea but this has been tested for and ruled out. I also get frequent headaches (mostly in the morning), and diarrhea probably a couple of times a week. I always get up to pee at least once in the night. Just to complicate things further I'm trying to taper off Venlafaxine/Effexor as I want to have a baby and that has caused me to have heart problems even though I'm making very tiny reductions. I reduced by 1mg last month and had a pounding heart that kept me awake and a winded feeling in my chest for 3 weeks. I also had several episodes of shaking uncontrollably. I've had a 24hr ECG done but by this point symptoms had subsided somewhat so I'm not hopeful that anything will show up. Anyway I have had blood tests that have ruled out: diabetes, thyroid problems, vitamin deficiencies, anemia. Chronic fatigue syndrome and sleep apnoea have also been ruled out. I recently had a synacthen test which I'm still waiting on results for but dr thinks it's highly unlikely to be that (and I think I would've heard by now if anything showed up on the test). I do have coeliac disease but have been gluten free for over two years and antibody levels are now normal. Thanks for reading