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Elscarl

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  1. IV infusions of saline. Sometimes I get B vitamins added as well. It's supposed to help to raise BP a bit and increase blood volume, I think.
  2. I have been having this exact problem at work. I have been very dizzy and was afraid to get up from my desk. For me, I think my anxiety over being dizzy and off balance was making it even worse. Once I was able to calm my mind and stop worrying it seemed to help a bit. I also started using essential oils to help with the dizziness and that seemed to really help me. I use the essential oils at nighttime too, along with meditation and it seems to help me sleep better which helps the dizziness.
  3. Navyblue- weird! The sensation is not painful for me, but it is very annoying and concerning. Sometimes it feels like a muscle twitch. Perhaps it is blood pooling? Do you have any of the other symptoms I described, like poor circulation feeling or nerve feelings? I see an autonomic specialist and he refuses to even see me. He's insisting its just from Dysautonomia and wants me to try IV infusions. I've gone once so far and it has only helped the dizziness.
  4. Hi All, I'm new here and trying to get some more information on dysautonomia. Recently I have been having a bad flare up (low blood pressure, orthostatic hypotension, exercise intolerance, muscle fatigue, very dizzy and off balance all the time). On top of this, I have been having some strange symptoms that I've never had before. My left leg has a "crawling" sensation. It pretty much happens all the time besides when I'm lying down, which is why I think it's related to dysautonomia. I also have some nerve sensitivity. For instance, if I touch a specific spot on my finger, it shoots a nerve pain down that finger. I also have been occasionally getting a feeling of poor circulation in my arms (it feels like my arm is getting squeezed by a blood pressure cuff) My neurologist assured me it's from dysautonomia, but I'm wondering if others get these symptoms as well?
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