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About shrparatch

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  • Birthday 07/09/1970

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  1. Thank you Nova, I just can't see myself not working. While like you I tend to drag myself most days and at times think that time off would do me good, I am the only income right now. I refuse to let this beat me. As long as I can manage to be upright I will continue to work. Thanks for the hug and my prayers are with you.
  2. Sarah, Thank you for your response. I am a nurse and have been for 17 years. I frequently have had to be taken out of work in a wheelchair. It is embarrasing. As for my diagnosis, I was not diagnosed at CC. I originally went there for my GP (gastroparesis) because my Dr's at the U of M were not doing anything for me and said that it was somatoform, basically all in my head. I am scheduled to see Dr Sweiss, inthe pain clinic, Dr Shields at the neuro clinic and a couple of other GI Dr's. However I dont see them until Sept and October. I too have trouble getting out of bed a couple days a week
  3. Hello Nova, I can relate to your trouble. I too am a nurse and it truely is more than just a job. While I am still working, I am very close to losing my job. I have been taken out of work in a wheelchair on so many occasions that I have lost count. I hope that you get better and find support here. I am struggling with how to cope with this disease. I am thankful that I am still able to work, but very upset because that is all I can manage most days. I have to take a nap after work every day and most often am left only able to lay down the rest of the day. My house and family have had to be p
  4. I was on Northera for a while after I began to have serious side effects from midodrine. While it worked very well for my BP, I began having severe headaches while I was on it. I have since been taken off the Northera and have started to have the severe headaches again so I am wondering if they were actually related to the Northera at all. Good luck to you, and I hope it will work for you.
  5. Hello, I am new here and have been suffering for years. I have multiple diagnoses including Gastroparesis, Neurocardiogenic Syncope, & IBS with diahrrea and constipation. I was originally diagnosed with these in late 2008. Since that time I have had multiple tests, been on multiple medications, and just progressively gotten worse. I have recently switched my care to the Cleveland Clinic. I have had several more blood tests and a QSART test (which I failed). I have a multitude of seemingly unrelated symptoms including lightheadedness, low BP, variable HR (50-120), vision disturbances
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