Just signed up. I have severe Orthostatic Hypotension and my Cardio just said he didn't know what to do for me. Tried Flurdo, Midodrine, compression stockings and lots of gatoraid/coconut water. Always dizzy and faint. There is only one doctor in the area that treats POTS, which I don't have, but I am on the waiting list. My bp drops when I stand and my pulse nearly stops. I have multiple autoimmune issues, Sjogren's, IBD...
Just wanted to make sure I am in the right place.
I am in my 40's and house bound. Not diagnosed with Autonomic problems yet, but I strongly suspect. Trying to get into Mayo or John Hopkins.
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in Dysautonomia Discussion
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Hello,
Just signed up. I have severe Orthostatic Hypotension and my Cardio just said he didn't know what to do for me. Tried Flurdo, Midodrine, compression stockings and lots of gatoraid/coconut water. Always dizzy and faint. There is only one doctor in the area that treats POTS, which I don't have, but I am on the waiting list. My bp drops when I stand and my pulse nearly stops. I have multiple autoimmune issues, Sjogren's, IBD...
Just wanted to make sure I am in the right place.
I am in my 40's and house bound. Not diagnosed with Autonomic problems yet, but I strongly suspect. Trying to get into Mayo or John Hopkins.
Advice is welcome.
Thank you,
Di