Sheri Lynn

I've finally got an appointment with a dysautonomia spealist in bowling Green ky on March 11. It's just a consult at first but at least it may get me a bit closer to the right tests/diagnosis. I've felt horrible today dizzy tired nausea shaking... Not sure if I'll even get an accurate test result since the cardio started me on a beta blocker? Thanks for the answers and I sincerely hope each of you find answers and treatments that will help you

My doctor is pretty sure I have pots but no diagnosis yet. I've got five tattoos and loved all of them but never had a problem except with my last where I just got dizzy. What about something that incorporates the spoon theory? You could probably find a cure spoon design and choose a meaningful word to you to go above it?

It is odd to me that my pcp mentioned it because the nerou the cardiologist and the endocrinologist I saw (who were supposed to be very good) acted like they knew very little about it. Sometimes I wonder if pcps or younger docs are just more open minded then others? Did you find any environmental things you could do to lessen symptoms?

Thank you! That is what I'm thinking about and all discuss with my pcp. I present as a typical hypothyroidism patient but that doesn't explain the tachycardia, vertigo, or heaviness/tingling in my arms and legs so I'm sure something else must be going on. Hopefully getting my thyroid under control will lessen the other symptoms. I have been drinking 3 to 4 liters of water a day for the past 6 months and just recently stopped using extra salt. It also seems to help when I wear compression socks. I'm curious to see if my pcp diagnosis me with hasimotos, as I know something must have triggered the hypothyroidism. I'm so glad you were able to find something that helped you.

Long story short I've been sick about eight months.my pcp immediately thought pots. Symptoms are : weight gain extreme fatigue dizziness tachycardia cold intolerance wide swings in bp irritability brain fog heavy arms and legs tingling in arms and legs. Saw a neroulogist and diganosed with mild sleep apena he didn't think pots but referred me to a cardiologist bc my heart rate didn't drop before 90 while sleeping. Wore holter monitor and stress test. Cardiologist said my stress test was normal and although my pulse ran a little high he didn't think it was anything to worry about. My heart rate got down to 70 and 80 but averaged around 109. It was significantly higher in daytime hours (when walking) then toward evening when I was sitting watching TV.He did say he thought pots could be a possibility but wouldn't explain all symptoms. He diagnosed me with tachycardia and gave me a beta blocker for symptoms. Pcp just called and said my blood tests show hypothyroidism and she gave me senthroid. My question is does this sound like pots an vs hypothyroidism? Should I pursue checking into pots and try to get the tilt table test my pcp originally wanted? Or do I try the beta blocker and thyroid med? I just want answers. Sorry this was long.thank you in advance, right now any insight means the world.

I went to my cardiologist today and should have results Wednesday. He did a stress test before I left and told me that it appeared my heart rate and blood pressure were close to where they should be. Before this however he looked at my blood pressure and heart rate log ( pulse 109 sitting then 121 after standing two minutes then 133 after ten minutes standing is one reading) I told him my primary care doctor was thinking POTS and he thought that was a real possibility! I'm wearing a holter monitor until Tomorrow morning. Uggghhh I just want some answers!

U forgot to mention I was diagnosed with daytime hypersomnia and repeditive intrusion of sleep

Thank you Katie. Yes I had both the nighttime sleep study and the daytime nap study, my nerouligist was Sure it was narcolepsy but it wasn't. My pcp wanted him to do a tilt table test but he immediately said it wasn't pots as soon as I mentioned it. I'm unsure if the cardiologist is familiar with dysautonomia, probably not since most aren't. I'm hoping if all else fails I'll get answers at Vanderbilt, I'm reading that there a leading authority. Thank you so much for letting me know you had similar symptoms. The excessive falling asleep was making me doubt pots because it isn't focused on in alot of research. I appreciate you sharing and taking the time to respond!

About eight months ago I began feeling very tired, uncontrollably sleepy. Since then symptoms have developed pretty quickly and stayed with me. Symptoms are : excessive sleepiness,falling asleep at random times, dizziness, sleepy esp after eating, freezing cold feet and hands, intolerance to temp changes, vertigo especially in elevators or on stairs, lapses in memory, tachycardia, wide swings in Np (ita usually low), shortness of breath, tremors, weight gain. I think that covers most of it. I've seen a neurologist who said I have mild sleep apena bit it wouldn't account for all my symptoms, an endocrinologist that found nothing and had all blood work come back normal. Waiting on results of Lyme test and third thyroid blood test. My pcp thinks it may be POTS and I see a cardiologist on Monday.if that comes back normal she may send me to Vanderbilt dysautonomia clinic. I guess I'm just asking if this sounds familiar, like pots? I'm so ready for answers, I'm about to just give up... Thank you